How To Thrive with Ehlers-Danlos Syndrome (My Self-Care Story)
Welcome to this week's Ask Charlie. A dear follower struggling with severe pain due to multiple joint and disc issues reached out in the hope that I might shed light on my similar symptoms due to an Ehlers-Danlos diagnosis. I'm not an expert, and encourage you to do what’s best for your own unique situation, but this week I’m sharing what I've learned managing this condition.
Ehlers-Danlos syndrome affects people differently, but for me, it means hyper-mobile joints and loose connective tissue. This condition has been a lifelong journey, impacting everything from my beloved sports to pregnancy.
Diagnosed in my early twenties, I faced numerous challenges, including broken bones and mismanaged treatments. However, a pivotal moment came when I found the right physiotherapist and exercise regimen with the fabulous Leigh Linton, which absolutely transformed my life.
Consistent strength training, proper technique, and listening to my body is key. I’ve learned to adapt my workouts to protect vulnerable areas, and thrive in the process.
Now, despite the inevitable need for knee replacement surgery in the future, I've regained control of my life. Exercise, balanced nutrition, and staying mindful of my body's needs have been game-changers and I wholeheartedly recommend finding what works for you, with a focus on strength - for both mind and body.
Remember, each journey is unique, but positive changes are always possible! Whether it's managing a health condition or pursuing personal goals, consistency and self-awareness are paramount.
I hope sharing my story encourages you on your own path, and do always feel free to reach out with questions or topics you'd like me to cover.
Love, Charlie x
